Why Me

Love and Support for Families with Childhood Cancer

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Mar 11 2021

Covid-19 pandemic – one year later, thanks to our community

Greetings to our Why Me Families, Volunteers, and Supporters –

This has certainly been an unprecedented twelve months. One year ago, we all put our lives on hold and hunkered down for two weeks.
Weeks turned into months, rooms in our homes became offices and schoolrooms, and familiar routines gave way to evolving uncertainty. Perhaps most disruptive was the loss of in-person contact. We all stopped visiting each other, talking face to face, and a good old hug became an elbow bump at best.

We have all done our best to maintain our careers, relationships, and sanity.  As I write this letter, spring is in the air, spirits are lifting, and hearts are hopeful that our toughest days are behind us.  Many of us are getting our vaccine, schools are moving toward full in-person learning, and businesses will follow. We have all come to appreciate that which was lost and we look to the future with optimism.

I would like to thank all our supporters from the bottom of our full hearts. Together we have made the most of a difficult time and emerged stronger for it.

Family Fun Events that we have had in place for years had to be re-imagined to accommodate new realities. These safety constraints were critical for our families given their fragile health and compromised immune systems. With that came indomitable spirit and grateful hearts for whatever we came up with. We made the most of our wonderful grounds at Sherry’s House with the Haunted Halloween Stroll, Holiday Drive Thru, and Angel Tree Walk.  We spent many evenings gathering virtually, whether for support groups or fun – including bingo, cooking and trivia nights.  How wonderful that we have been able to continue our traditions and reaffirm that it doesn’t matter where or how we gather but only that we come together to support each other.  As most of our fundraisers were cancelled last year, all of this was made possible through the generosity of our donors and supporters. To every single one of you who helped us provide love and support to our families, thank you.

We are making plans for Family Fun Events and all our popular events and gatherings just as soon as it is safe to do so. To our dedicated volunteers, get ready! We will be in touch in the coming months to let you know what we have in store for you and ask that you be patient for just a little longer.  If you are not signed up to volunteer with us but would like to, please download the application here.  If you would like to get involved from afar, check out our website for fun virtual fundraisers or send us some items from our wish list to keep our pantry stocked.

We are so excited for the light at the end of the tunnel. Better times are coming.  Thank you for standing alongside us through this unpredictable year.

Be safe and be joyful,

David Hagan, Executive Director

Category: Donors · Tagged: 2020_pandemic, childhood_cancer, covid-19_update, family_fun_events

Nov 20 2020

Consigli Builds Handicap Ramp for Why Me Family

Rihanna and family, 2015
Rihanna’s story

In September 2013, three-year-old Rihanna was diagnosed with leukemia.  Her parents did not know anything about the disease except that it was life threatening.  Just two months prior her mom had given birth to a baby boy, making Rihanna’s diagnosis even more stressful.  They had to make life altering medical decisions for Rihanna while also giving Roddiel the attention he needed.

Rihanna immediately started chemotherapy treatments and began receiving blood and platelet transfusions.  She was handling treatments well and maintained her same spunky personality.  After having chemotherapy injected directly into the cerebrospinal fluid via lower spine, Rihanna began to experience severe pain.  Then she began to have seizures and suffered a cerebral edema.  She was in coma and doctors told her parents that she would not survive.  After two months in a coma, with her eyes still closed, Rihanna began to move her fingers – it was a miracle.  It was confirmed that she had a stroke, thrombrosis, hydrocephalus and a cerebral edema.  Their once energetic daughter was now suffering from paralysis and her parents were told there was nothing more the doctors could do.

Her family immediately uprooted their lives and traveled from Puerto Rico to Boston, for treatment at the Dana Farber. They left everything behind for the chance to save Rihanna’s life. They arrived in Boston where a specialized treatment plan was made that would last for nearly two years. In 2014, they moved into Sherry’s House where they spent a few years managing Rihanna’s care and building a new life for themselves in Worcester. Rihanna’s father got a job at TJX Companies where he works hard to provide for his family.

Consigli steps up

This March, her family purchased a home in Spencer that was not wheelchair accessible. While her father has put in a lot of work to renovate the home, building a wheelchair ramp was too big of a job for him. Over the Summer, Why Me reached out to Consigli Construction for help.   They were happy to  jump in and help with getting materials donated through local vendors and putting a group together to build the family a wheelchair ramp.  Throughout the duration of this project, 35 Consigli volunteers assisted in completing the ramp, helping the family be more comfortable and have more freedom in their new home.

This project would not have been possible without the help from Consigli’s partners at Ashland Lumber, Colony Hardware, Dauphinais Concrete, & Karp Building Supply donating materials.  A big thank you to the following Consigli team members for donating their time and skills to help Rihanna’s family:

Dan Alden, Mike Boucher, Jon Burton, Peter Capone, Michael Caputo, Anthony Cheschi, Mike Collins, Lewis DeJesus, Ed Demars, Dan Donahue, David Estella, William Feraco, Mark Finnegan, Pat Flanigan, Jon Gagliardi, Steve Gentilucci, Adam Gordon & Sons: Jacob, Aidan & Colin, Matthew Guimond, Mike Hanlon, Dean Hanson, Mike Haseltine, David Kutz, John Laperle, Gabe Mater, Jack Moran, Janice Narowski, Duarte Pacheco, Cam Patch, Jon Potter, Kyle Raposa, Mark Sanchioni, & Jeffrey Scannell.

Consigli volunteers and Rihanna’s parents

Category: Donors, Volunteers · Tagged: childhood_cancer, Consigli_Construction, sherrys_house, why_me

“The Next Step”

The first annual 100 Mile Ruck March Challenge took place in July and raised over $73,000 for Why Me. This is a military inspired event, … [Read More...]

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